Jesy Nelson recently took a break to focus on her well-being after her twins faced serious health challenges. She shared a new hairstyle on Instagram on Wednesday.
The 34-year-old singer shared in January that her twins, Ocean and Story, now nine months old, have been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a rare disease that affects muscles. Since then, she’s been dedicated to caring for them.
Jesy Nelson debuted a new blonde hairstyle, created by stylist Chris Southern, and shared a video hinting at her return to making music.
The song ‘Game Time’ by Thebosswives includes the line: ‘I rested for a while, and now it’s time to get things done!’
After her twins received a diagnosis of Spinal Muscular Atrophy Type 1 (SMA1), Jesy began advocating for the NHS to include newborn screening for the condition. She explained that because her twins weren’t diagnosed early enough, they will never be able to walk.
She was thrilled last week when Health Secretary Wes Streeting revealed plans to screen over 400,000 babies for the condition, starting in October 2026.
Jesy shared exciting news on Instagram, announcing that newborn screening for Spinal Muscular Atrophy (SMA) will begin in England in October 2026. She expressed her pride, calling it a significant achievement for those affected by SMA.
Inspired by her daughters’ experiences, the singer has passionately advocated for the NHS to offer broader screening for spinal muscular atrophy.
The pilot will see an estimated 400,000 babies tested in England.
As a long-time supporter of the NHS, I know they currently test newborns – around five days old – with a simple heel prick test. This checks for 10 conditions they can treat, like cystic fibrosis, ensuring babies get the best possible start in life.
In a letter to the singer and Giles Lomax, the CEO of SMA UK, Streeting stated that he promised to explore ways to speed up and expand the testing of SMA screening programs after their meeting.
We’re happy to announce that screening will begin in October of this year, earlier than the previously scheduled start date of January 2025.
Even though her nine-month-old daughters have been given a very serious diagnosis – doctors don’t expect them to live past age two – Jesy recently shared that she’s continuing to film her Prime Video series, determined to ‘make a difference’ despite the heartbreaking news.
During a recent interview, she expressed her hope that viewers will keep following the story. She explained that after the girls received their diagnosis, they made the decision to keep filming.
Despite the difficulty, we realized there was a purpose to this, and we needed to try and make something good come of it.
It breaks my heart to hear Jesy talk about what her little ones go through daily. She’s shared how the necessary medical procedures are so tough, and it feels awful for her – she says it’s like she’s the one hurting them when they cry out. It’s just so incredibly difficult to watch someone you care about deal with something like that.
Okay, so she basically said taking care of the twins is…intense. Like, unbelievably up and down. Some days are just awful, truly the worst, and others…well, they’re not great, but a little bit easier, I guess. It’s just… a lot. I can’t even imagine! She was so honest about how hard it is, and honestly, it makes me love her even more.
Jesy and her former partner, Zion, didn’t anticipate the challenges of caring for their children, and Jesy admits that covering their medical expenses is a constant worry.
It’s hard to describe how demanding things are – I can talk about it, but you really need to experience it yourself to understand how intense it is.
Jesy Nelson recently told Jamie Laing on his podcast, Great Company, that she’s optimistic her children will overcome their health challenges thanks to the treatment they’re receiving, and hopes they’ll live long and fulfilling lives.
She explained that spinal muscular atrophy is a disease where the muscles weaken and waste away because individuals with the condition lack a specific gene that most people have.
It’s just… it’s horrifying to watch. Their little bodies are slowly losing muscle, just wasting away, and the doctors say if they don’t get help soon, all their muscles will just… stop working. It’s not just about being weak, it’s their breathing, their ability to swallow… everything will be affected. And the worst part? They won’t even live to be two years old. It’s absolutely devastating to think about.
Things aren’t great, but I’m learning to accept the situation and focus on making the best of it. My daughters are incredibly strong and I truly believe they’ll overcome any challenges they face.
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2026-04-08 22:04