Jesy Nelson shows off her tattoos in a crop top after receiving a ‘bittersweet’ update on her twin daughters’ SMA condition

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Jesy Nelson showed off her array of tattoos in a new photo shared on Tuesday. 

The 34-year-old singer showed off tattoos of a rose and the beginning of the phrase ‘Once upon a time’ while wearing a crop top.

I’m loving the fresh-faced look Jesy Redknapp is sporting! She kept her makeup really natural and soft, and pulled her hair back into a simple, chic ponytail. It’s a great everyday style – effortless and beautiful!

Jesy recently shared frustrating news about Spinal Muscular Atrophy (SMA) testing: whether or not a baby receives a diagnosis often depends on where they live.

In January, she shared that her twins, Ocean and Story, now nine months old, have been diagnosed with Spinal Muscular Atrophy Type 1, a rare disease that weakens muscles.

Because the diagnosis came so late, her daughters will likely never be able to walk and require ongoing support, including breathing machines at night and feeding tubes.

Even though the UK’s National Screening Committee decided against adding a new muscle disease to newborn screening programs earlier this year, Wes Streeting announced on Wednesday that screenings for the condition will begin for over 400,000 babies starting in October 2026.

Jesy explained to her fans that these newborn tests won’t be available everywhere in England just yet, and there’s still more work to be done to expand access.

She explained that the new screening program is only available in specific areas of England, meaning babies outside those areas won’t be tested for Spinal Muscular Atrophy (SMA), which she feels is unfortunate.

Where a baby is born often determines the care they receive, and that’s unfair. Every baby deserves the best start in life, and while progress is being made, we still have a lot of work to do to ensure all babies get the support they need.

I’m continuing to work hard to expand this initiative throughout England. Plus, the petition we all signed has reached 100,000 signatures, which means it will now be discussed in Parliament – that’s fantastic news!

I really appreciate all of your support and kindness – thank you so much! You’re all incredible.

Jesy kicked off the video by celebrating a significant achievement and expressing her pride in how much progress the campaign has made.

I wanted to share some information and updates I’ve learned recently.

I’ve been working to include Spinal Muscular Atrophy (SMA) in England’s newborn screening program. My daughters were diagnosed with SMA Type 1, and sadly, they weren’t tested at birth because screening for it wasn’t available in England at the time.

Starting in October, all newborns in England will be tested for Spinal Muscular Atrophy (SMA), which is fantastic news.

This is a huge step for the SMA community. People have been working for years to achieve this, and it’s a very proud moment for everyone involved.

Inspired by her daughters’ experiences, the singer has passionately advocated for the NHS to offer broader screening for spinal muscular atrophy.

The pilot will see an estimated 400,000 babies tested in England.

As a long-time supporter of the NHS, I know they currently test newborns – around five days old – with a simple heel prick test. This checks for a handful of serious, but treatable, conditions, like cystic fibrosis. It’s a vital early check to give babies the best start.

In a letter to Jesy and Giles Lomax, the CEO of SMA UK, Streeting stated that he would explore ways to speed up and expand the testing of newborn babies for Spinal Muscular Atrophy (SMA). He made this commitment following their meeting.

We’re happy to announce that screening will begin in October of this year, earlier than the previously scheduled start date of January 2025.

Even though her nine-month-old daughters have been given a very serious diagnosis – doctors don’t expect them to live past age two – Jesy recently shared that she’s continuing to film her Prime Video series, determined to ‘make a difference’ despite the heartbreaking news.

During a recent interview, she expressed her hope that viewers will keep following the story. She explained that after the girls received their diagnosis, they made the decision to keep filming.

Despite the difficulty, we realized there was a good reason everyone was involved, and we needed to try and make the most of it.

Jesy Nelson recently shared with the Daily Mail that watching her children go through their daily medical treatments is incredibly painful, as it feels like she’s causing them distress when they cry and scream.

She said caring for the twins was incredibly emotionally challenging, with some days being awful and others a little easier.

Jesy and her former partner, Zion, didn’t anticipate the challenges of raising their children, and Jesy admits that covering the costs of their healthcare is a constant worry.

She described her daily life as incredibly intense, saying that words couldn’t truly capture how demanding it was – you’d have to experience it yourself to understand.

Jesy Nelson recently told Jamie Laing on his podcast, Great Company, that she’s optimistic her children will overcome their health challenges thanks to the treatment they’re receiving, and she hopes they’ll live long and fulfilling lives.

She explained that spinal muscular atrophy is a condition where the muscles weaken and waste away because individuals with the condition lack a specific gene that most people have.

Their muscles are weakening and shrinking, and without prompt treatment, they will eventually stop working altogether. This impacts vital functions like breathing and swallowing, and tragically, these children typically don’t survive past the age of two.

Things aren’t ideal, but I’m learning to accept the situation and focus on making the best of it. My daughters are incredibly strong and I truly believe they’ll overcome any challenges they face.

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2026-04-07 22:51