Jesy Nelson shares cute new photos of her baby twins Ocean and Story wearing adorable matching hats – amid their heartbreaking health battle

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Jesy Nelson posted a sweet video on Instagram Monday showing her baby twins enjoying a walk together in their stroller.

Little Mix singer Perrie Edwards, 34, and her former fiancé, Zion Foster, became parents to their daughters, Ocean and Story, in May 2025. The twins arrived earlier than expected.

Earlier this year, she shared heartbreaking news: both of her babies had been diagnosed with a serious genetic condition called Spinal Muscular Atrophy Type 1 (SMA1).

This condition causes muscle weakness by damaging the nerve cells that control muscles in the spinal cord. The most common and serious type, Type 1, typically leads to a life expectancy of less than two years if left untreated.

On Monday, Jesy posted an adorable video of her daughters enjoying the outdoors, both wearing matching white hats and outfits.

The singer was spotted out with her twin daughters, who were visibly using feeding tubes.

This follows Jesy Nelson’s recent tribute to mothers, where she praised ‘superhuman’ mums, while her twins continue to face a difficult health challenge.

She recently posted photos from a photoshoot featuring families and children facing different health challenges and disabilities.

She wrote in her post: ‘Happy Mother’s Day to all the incredible moms!’

If you’re having a tough day, I’m sending you my support. I recently spent time with some amazing mothers and families, celebrating the strength and resilience of women.

Hearing the parents share their experiences and talk about their incredible children, who have faced so many challenges, was truly moving. I’m excited to share these inspiring stories with you soon.

She also shared a heartfelt message for anyone who couldn’t be with their mom on that day.

Jesy recently shared some difficult news in her documentary, Life After Little Mix, revealing her babies’ heartbreaking diagnosis. She also frequently uses Instagram to keep fans updated on their health journey.

This touching story follows Jesy’s recent admission that she was moved to tears upon seeing the customized high chairs made for her nieces.

Because SMA1 gradually weakens their muscles, Ocean and Story need feeding tubes to help them eat since they have trouble swallowing and sucking, and also struggle with breathing. They also require special chairs to help them sit up straight and maintain good posture.

When the two chairs were delivered, their mother cried, explaining they symbolized yet another challenge in their ongoing health struggles.

She shared a photo of the new high chairs for her daughters, explaining that she cried when they arrived yesterday. She was so moved to finally have the special feeding chairs the girls needed.

Seeing this just makes me feel down, as it’s another challenge we face with Spinal Muscular Atrophy. Does anyone else feel the same?

In addition to being a mother, Jesy is actively working to convince the NHS to include testing for SMA1 in the standard newborn heel prick test.

She believes that if her twins had received the £1 test and been diagnosed and treated sooner, they might not have needed to have their legs amputated.

I’m really impressed with how quickly this celebrity has mobilized support! They launched a petition that’s already gathered over 100,000 signatures, urging the government to prioritize funding and speed up the approval process. Because of that incredible response, Parliament is now obligated to actually discuss the issue – that’s a huge win for raising awareness and potentially driving real change!

It absolutely breaks my heart, but Jesy’s putting her music on hold. Can you believe it? She’s so focused on getting this crucial screening added to the newborn blood spot test – it’s amazing, honestly – and making sure her daughters are getting the care they deserve. It’s devastating for us fans, of course, but seeing her prioritize this? It just makes me love her even more. She’s a true inspiration, putting everything on the line for her girls and for other babies who could benefit from this. I’ll miss the music, terribly, but I completely understand and support her. She’s incredible.

Speaking on Heart FM’s breakfast show with Amanda Holden and Jamie Theakston, she said she wouldn’t rule out a return to making music, but her children are currently her priority.

To be frank, I’m completely swamped right now. My children are my top priority, and I’m dedicated to fighting for changes to the heel prick test and helping them thrive. That’s where all my energy is going.

‘Because that’s going to determine their future. That’s my main focus right now.’

She told the Daily Mail that raising the twins has been a very emotional experience, with some days being incredibly difficult and others a little easier.

Jesy shared that she and her ex, Zion, didn’t anticipate the challenges of raising their children, and covering the costs of their healthcare is a constant worry.

She described the daily medical treatments her children need as deeply painful, explaining that their cries and screams make her feel like she’s the one causing them harm.

Jesy told the Daily Mail that it’s hard to describe how demanding her daily life is – you really have to experience it to understand, she said.

To be honest, I’m finding it really difficult to manage some unexpected medical issues. I never anticipated dealing with this, and it’s been a struggle.

They’re so small, and even though I know the things I’m doing are ultimately helpful for them, it’s really difficult when they’re upset and crying. It feels awful to be the one causing their distress, and all I want is to be a comforting mother.

Jesy explained that describing a typical day with her twin daughters is impossible because every day feels different emotionally.

It’s hard to describe what my days are like. Some days are incredibly difficult, while on others, even though I’m still aware of the diagnosis, things feel a little easier and less overwhelming.

Lots of mothers have warned me it will be an emotional experience, so I’m trying to focus on getting through each day as it comes. It won’t be a calm or predictable process – more like a rollercoaster with lots of ups and downs.

She also spoke about the heartbreaking news that Ocean and Story might not survive past their second birthday.

Jesy Nelson recently told Jamie Laing on his podcast, Great Company, that she’s optimistic about her children’s progress now that they’re getting the care they need.

Spinal muscular atrophy is a disease that causes muscles to weaken and waste away. It happens because people with this condition are missing a gene that most people have.

Their muscles are weakening and shrinking, and without timely treatment, they will eventually stop working altogether. This impacts essential functions like breathing and swallowing, and tragically, these children typically don’t survive past the age of two.

Things aren’t ideal, but I’m learning to accept the situation and focus on making the most of it. My daughters are incredibly strong and I truly believe they’ll overcome any challenges they face.

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2026-03-16 19:51