Jesy Nelson shares heartbreaking admission about daughter Ocean after baby pulls out her feeding tube amid devastating health battle: ‘We really take the little things for granted’

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Jesy Nelson shared a difficult experience, explaining that her daughter, Ocean, unintentionally pulled out her feeding tube.

As a bit of a lifestyle insider, I’m sharing that Leigh-Anne Pinnock, you might know her from Little Mix, became a mom to adorable twin girls, Ocean Jade and Story Monroe, back in May 2025. They arrived a little earlier than expected, and she shares them with her ex-fiancé, Zion Foster. It’s such a sweet story!

Last month, she shared the heartbreaking news that her two babies have been diagnosed with a serious genetic condition called Spinal Muscular Atrophy Type 1 (SMA1), which affects their muscles.

Because Spinal Muscular Atrophy type 1 causes muscles to weaken and waste away over time, the girl requires feeding tubes to help her eat, as she has significant trouble swallowing, sucking, and breathing.

In a very emotional statement, the singer openly admitted she often forgets what her daughter’s face looks like without the feeding tube, explaining it helps her remember how easily we overlook the things we have.

Jesy shared a sweet moment with her baby, Ocean, gently touching her cheeks and posting about a milestone: Ocean had her feeding tube removed that morning. Jesy admitted she’d almost forgotten what Ocean’s face looked like without it.

It’s easy to overlook the small joys in life. I’d give anything to see her smile like that every day.

Jesy Nelson’s documentary, Life After Little Mix, came out on Friday. In it, she discussed her children’s health issues and explained why she chose to leave Little Mix in 2020.

The actor is currently advocating for the National Health Service to include screening for Spinal Muscular Atrophy type 1 (SMA1) in the standard newborn heel prick test. They recently achieved a significant milestone with a petition urging the government to fund and expedite this process, gathering over 120,000 signatures.

She believes that if her twins had received the £1 test and been diagnosed and treated sooner, they might have been able to keep their legs.

While advocating for newborn screening for her daughters’ condition and managing their healthcare, Jesy has put her music career on hold.

During an interview on Heart FM’s Breakfast show with Amanda Holden and Jamie Theakston on Thursday, she explained that while she wouldn’t rule out making music again, her children are currently her top priority.

To be honest, I’m completely focused on my children right now and simply don’t have the bandwidth for anything else. They are my priority, and I’m dedicated to fighting for a change in the heel prick test and helping them thrive. That’s what matters most to me.

‘Because that’s going to determine their future. That’s my main focus right now.’

She told Daily Mail that raising the twins has been a very emotional experience, with some days being incredibly difficult and others a little easier.

Jesy shared that she and her ex-partner, Zion, didn’t anticipate having to care for their children the way they do, and covering the costs of their medical care is a constant challenge.

She described how watching her babies go through daily medical treatments is incredibly painful, feeling like she’s causing them distress as they cry out.

Let me tell you, life is constantly demanding! I can try to describe just how intense things get, but honestly, words don’t do it justice. You really have to experience it firsthand to truly understand.

To be honest, I’m still finding it really difficult to manage some ongoing medical needs. It’s something I never anticipated dealing with, and it’s been a challenge.

It’s hard because they’re so small, and even though I know what I’m doing is ultimately helpful, it’s upsetting to see them upset and feel like I’m causing them pain. I just wish I could always be the comforting parent they need.

Jesy explained that describing a typical day with her twin daughters is impossible because every day feels different emotionally.

It’s hard to describe what my days are like. Some days are really awful, while on others, even though I don’t forget what’s happening, things feel a little easier and less overwhelming.

Lots of mothers have warned me it’s going to be unpredictable, so I’m trying to focus on getting through each day as it comes. It won’t be a smooth ride – I expect lots of ups and downs.

It absolutely breaks my heart to hear that Ocean and Story might not live past two years old. It’s just devastating news, and I’m sending all my love and hoping for a miracle.

Jesy Nelson recently told Jamie Laing on his podcast, Great Company, that she’s optimistic her children will overcome their challenges thanks to the treatment they’re receiving.

Spinal muscular atrophy is a disease that causes muscles to weaken and waste away. It happens because people with this condition are missing a gene that most people have.

Their muscles are weakening and shrinking, and without timely treatment, they will eventually stop working altogether. This impacts essential functions like breathing and swallowing, and sadly, these children typically don’t survive past the age of two.

This isn’t ideal, but I’m accepting it and focusing on making things as good as possible. My daughters are incredibly strong and I truly believe they’ll overcome any challenges they face.

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2026-02-19 15:38