Jesy Nelson shares new update on twins, 9 months, following hospital stint where her daughters were fitted with leg splints amid their ongoing treatment for SMA

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Jesy Nelson posted sweet new pictures of her twin daughters on Instagram Monday, after they received leg splints at Great Ormond Street Hospital.

Earlier this year, 34-year-old Jesy Nelson, who used to be in the group Little Mix, shared that her children, Ocean and Story, have been diagnosed with Spinal Muscular Atrophy (SMA). This is a genetic condition that causes muscle weakness by impacting the nerves that control movement.

The most severe form, Type 1, can have a life expectancy of less than two years without treatment.

Jesy stepped out with her baby girls on Monday, sharing that she’d recently bought them adorable matching pink, fluffy hats to stay warm.

The singer’s young daughters were enjoying a walk in their double stroller, each with a feeding tube gently placed in their nose and snugly wrapped in blankets.

Oh my gosh, you guys, Jesy just shared the sweetest pictures of her little twins getting looked after at Great Ormond Street Hospital! It totally broke my heart, but she didn’t say what was going on, just that they were getting amazing care. I’m seriously so worried about them, but so glad they’re in such good hands. I’m just sending all my love and hoping they’re okay!

The babies, all nine months old, were nestled together in a blanket, and each wore a small brace on their legs.

She shared the news following a difficult Wednesday, during which she visited a Scottish lab that was the first to begin testing for the rare condition affecting her twins.

She shared a photo from the hospital, taken with the medical team, and explained she was visiting a lab in Scotland that screens newborns for Spinal Muscular Atrophy (SMA), calling it an emotional day.

As part of a two-year pilot scheme, all babies born in Scotland will now be tested.

Scotland became the first part of the UK to announce a new screening program earlier this week. Following the announcement, Jesy Nelson shared a post on Instagram calling the news ‘bittersweet,’ suggesting the screening could have significantly changed things for her and other young women.

Giles Lomax, head of the SMA UK charity, believes the new screening program in Scotland will encourage other areas of the UK to accelerate their testing initiatives. He emphasized the urgency, noting that four babies are diagnosed with Spinal Muscular Atrophy (SMA) each month, and time is critical.

Now that three effective treatments are regularly offered by NHS Scotland and included in newborn screening, the outlook for babies diagnosed with Spinal Muscular Atrophy (SMA) is significantly better than it used to be for those diagnosed after showing symptoms.

‘It basically gives children the life they deserve.’

It absolutely broke my heart to hear about Jesy’s little girls and their incredibly difficult prognosis. Knowing they might not live past two years is just devastating. But what really inspires me is that, even with all that pain, she’s choosing to continue filming her Prime Video series. She’s determined to use her platform to ‘make a change,’ and I admire her strength and dedication so much. It’s a truly brave thing to do, and I’ll be supporting her every step of the way.

During a recent interview, she expressed her hope that viewers will keep following the story. She explained that after the girls received their diagnosis, they made the decision to keep filming.

Despite the difficulty, we realized there was a purpose to this, and we needed to try and make the most of it.

After publicly sharing her diagnosis, Jesy has been advocating for newborn babies in the UK to be screened for Spinal Muscular Atrophy type 1 (SMA1) by the National Health Service (NHS).

While dealing with health challenges, Jesy ended her relationship with her fiancé, Zion Foster, who is the father of her children.

She cried with joy last month when her petition gained over 100,000 signatures. This meant Parliament had to officially discuss it.

She was incredibly grateful for the moment, saying she couldn’t express how happy she was, and that it was all thanks to everyone involved.

Thank you to everyone who signed this petition – it means the world to me and to those affected by SMA. We’ve cleared the first obstacle, and I’m confident that working together, we can achieve real change!

I’m so thrilled to share that she’s officially become a patron of SMA UK! It’s fantastic to see her continuing her amazing work and supporting such a vital charity, especially after announcing it last month. It really means a lot to me and so many others.

She expressed how moved she was to work with the charity and promised to keep advocating for the inclusion of the test in newborn screenings.

She announced in February that she was officially a patron of SMA UK, sharing a photo of her certificate on social media and expressing how proud she was.

I’m incredibly grateful for this. The SMA community has really moved me – seeing the children’s courage, the families’ strength, and all the love they share is truly inspiring.

I plan to continue speaking out – for my daughters, and for other families dealing with similar challenges. I’m also advocating for a simple test, currently used for newborns, to include screening for Spinal Muscular Atrophy, so babies can get diagnosed and receive treatment as quickly as possible.

You can now find the link to my support page in my bio and stories. Even the smallest contribution – whether it’s a donation, a share, or just a conversation – truly makes a difference, helping to spread awareness and offer hope.

‘If you would like to donate, you can text JESY5 to 70470 to donate £5.’

It breaks my heart to hear Jesy talk about what her little ones go through daily. She’s shared how the necessary medical procedures cause them so much pain – she says their cries and screams make her feel like she’s the one hurting them, and honestly, it’s just devastating to imagine.

She said taking care of the twins was incredibly emotionally challenging, with some days being awful and others a little easier.

Jesy and her ex-partner, Zion, didn’t anticipate the challenges of caring for their children, and Jesy admits it’s a constant effort to afford their medical care.

It’s hard to describe how demanding things are – I can talk about it all day, but you really need to experience it yourself to understand the intensity.

Jesy Nelson recently told Jamie Laing on his podcast, Great Company, that she’s optimistic her children will overcome their health challenges thanks to the treatment they’re receiving, and hopes they’ll live long, full lives.

She explained that spinal muscular atrophy is a disease where the muscles weaken and waste away. This happens because people with the condition are missing a gene that most people have.

Their muscles are weakening and shrinking, and without prompt treatment, they will eventually stop working altogether. This impacts essential functions like breathing and swallowing, and tragically, these children usually don’t survive past the age of two.

Things aren’t ideal, but I’m learning to accept the situation and focus on making the best of it. My daughters are incredibly strong and I truly believe they’ll overcome any challenges they face.

As she cares for her daughters, Jesy previously said how her music career is on hold for now. 

Jesy recently shared on Heart FM’s breakfast show that she’s now completely focused on raising her twins.

She shared that while she wouldn’t rule out returning to music completely, her children are her priority right now and she simply doesn’t have the time for it.

My children are the most important thing in my life, and I’m completely dedicated to them. I’m working hard to improve the newborn heel prick test and ensure they grow up healthy and strong – that’s what matters most to me.

‘Because that’s going to determine their future. That’s my main focus right now.’

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2026-03-30 21:26