Tara Moss shares the agonising reality of living with disorder that left her using wheelchair: ‘You feel like you’re being burned alive’

Tara Moss shares the agonising reality of living with disorder that left her using wheelchair: 'You feel like you're being burned alive'

As a follower and admirer of Tara Moss, I have been deeply moved by her courageous journey with Complex Regional Pain Syndrome (CRPS). Her resilience and unwavering spirit are truly inspiring. Eight years ago, when she was first diagnosed, it must have felt like an insurmountable challenge. But Tara has shown us all that even in the face of debilitating pain, one can still rise above and shine brightly.


Tara Moss has been living with a disorder that leaves her in constant pain for eight years. 

As a devoted admirer, I’ve found myself grappling with Complex Regional Pain Syndrome (CRPS), an unyielding companion that has forced me to spend days confined to my bed and other times navigating the world with the aid of a wheelchair or cane.

As a woman who has walked through the journey of life for five decades, I can attest to the fact that despite making significant strides forward, one still encounters debilitating symptoms that challenge us. Sharing her story this week with Stellar Magazine, this remarkable individual illustrates the complexities and resilience that characterizes our existence. It’s a powerful reminder that while we grow older, life continues to present us with hurdles, but it also offers opportunities for triumph and growth.

She informed the media outlet that her body was in a state of high alert, as if it was facing a dangerous situation, and she felt as though she was on fire.

She went on, “In essence, your mind can’t tell the difference between the simulation and actual pain. You truly feel the burning sensation as if it were real.”

In simpler terms, it means that your body isn’t able to heal properly right now as it’s focusing on providing you with the necessary energy to help you overcome a critical or dangerous circumstance in your life.

Tara has recently changed her name to Tara Rae Moss and says it reflects how her life has changed. 

‘I don’t feel like “Tara” in the same way, and I’m embracing it rather than denying it’ she said. 

Tara Moss shares the agonising reality of living with disorder that left her using wheelchair: 'You feel like you're being burned alive'

For quite some time now, Tara has experienced various forms of treatment, such as foot baths, physical rehabilitation, and massage therapy.

The Canadian-Australian described her long journey, last year, writing What a remarkable time in my life. 

‘Week seven at the Spero Clinic, after perhaps 150 hours of treatments, care, pain and miracles.’

Tara expressed her joy by stating that the ability to climb stairs without a mobility aid, something seemingly straightforward, feels like a fulfillment of a dream for her.

Tara Moss shares the agonising reality of living with disorder that left her using wheelchair: 'You feel like you're being burned alive'
Tara Moss shares the agonising reality of living with disorder that left her using wheelchair: 'You feel like you're being burned alive'

She shared that she had walked alone for more than an hour this past week, finding it incredibly rewarding. Despite the challenges, she asserted, the treatment is absolutely worth enduring.

Over the past few years, Tara has been candid about battling persistent discomfort, regularly sharing images of herself using a cane or wheelchair on Instagram.

2021 saw her grant an open interview, during which she disclosed that persistent discomfort has significantly altered how her mind processes information.

The brunette woman shared with Body and Soul magazine, “I’ve discovered that persistent pain is essentially incorrect brain adaptations, or neuroplasticity, run amok.”

Having navigated through countless challenges in my life, I’ve come to understand that the human brain is incredibly adaptable. Now, I aim to leverage this ability to work towards a more tranquil existence. Instead of allowing my brain to continue broadcasting my pain so loudly, I choose to retrain it, helping it find silence and serenity instead.

Tara Moss shares the agonising reality of living with disorder that left her using wheelchair: 'You feel like you're being burned alive'

In another part of the interview, the author expressed concern about the scarcity of user-friendly environments for individuals with disabilities.

At 14 years old, Tara started modeling, but later shifted her focus to writing and published her debut novel, titled “Fetish,” in the year 1999.

She currently stands as an internationally acclaimed crime novelist, having written and sold 13 books across 18 nations and 13 different languages. She is widely recognized as one of Australia’s top crime writers.

Previously, the woman resides in the Blue Mountains alongside her Australian poet spouse, Berndt Sellheim, and their 12-year-old child named Sapphira.

Tara Moss shares the agonising reality of living with disorder that left her using wheelchair: 'You feel like you're being burned alive'

Read More

2024-08-24 16:52

Previous post Every movie in the Alien franchise, ranked (including Alien: Romulus)