Jesy Nelson celebrates ‘superhuman’ mums on her first Mother’s Day – amid her twins’ heartbreaking health battle

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Okay, so, Jesy Nelson totally melted my heart yesterday! It was her first Mother’s Day ever, which is amazing, but it’s been so tough for her with her little twins being so unwell. She posted about ‘superhuman’ mums, and honestly, it just felt so real and raw. You can tell she’s completely devoted, even while going through everything. It was such a sweet, but also heartbreaking, post – I’m sending all the love to her and her babies!

Little Mix singer Perrie Edwards, age 34, and her former fiancé, Zion Foster, had twin daughters in May 2025, earlier than expected.

My heart absolutely shattered last month when she shared the news. Both her precious babies… they’ve been diagnosed with Spinal Muscular Atrophy Type 1, or SMA1. It’s just… devastating. I can’t even imagine how hard this must be for her and her family. It feels like a nightmare.

This condition causes muscle weakness by damaging the nerve cells that control muscles in the spinal cord. The most severe form, Type 1, is also the most common, and without treatment, people with this type typically live less than two years.

She recently posted photos from a photoshoot featuring families and children with different health challenges and disabilities.

She wrote in her post: ‘Happy Mother’s Day to all the incredible moms!’

If you’re having a tough day, I’m sending you my support. I recently spent time with amazing mothers and families, celebrating the strength and resilience of women.

Hearing the parents share their experiences and talk about their incredible children, who have faced so many challenges, was truly moving. I’m excited to share these inspiring stories with you all.

She also shared a heartfelt message for anyone unable to be with their mothers on this special day.

As a dedicated follower of Jesy Nelson, I was deeply moved by her openness in her documentary, Life After Little Mix, where she bravely shared the heartbreaking diagnosis her babies received. She also keeps us updated on their health journey through Instagram, and I really appreciate her vulnerability and willingness to share what’s happening in their lives.

This sweet story follows Jesy’s recent admission that she was moved to tears when she first saw the custom feeding chairs made for her children.

Because SMA1 causes muscles to gradually weaken and shrink, Ocean and Story need feeding tubes to help them eat, as they have significant trouble swallowing, sucking, and breathing. They also require special chairs to help them sit up straight and maintain good posture.

When the two chairs were delivered, their mother was overcome with emotion. She shared that it served as a painful reminder of the ongoing challenges they faced with their health.

She shared a photo of the new high chairs for her daughters, explaining that she cried when they arrived yesterday. She was so touched to finally have the special feeding chairs the girls needed.

Seeing this just makes me feel down, as it’s another challenge we face with Spinal Muscular Atrophy. Does anyone else feel the same?

In addition to being a new mother, Jesy is actively advocating for the NHS to include screening for Spinal Muscular Atrophy Type 1 (SMA1) in the standard newborn heel prick test.

She believes that if her twins had received the £1 test and been diagnosed and treated sooner, they might not have needed to have their legs amputated.

The celebrity has already gathered over 100,000 signatures on a petition asking the government to quickly fund a particular initiative. Because of this strong public support, Parliament is now required to discuss the issue.

I’m absolutely gutted, but I totally understand. Jesy’s been fighting so hard to get this screening added to the newborn blood spot test – it’s incredible how dedicated she is to helping other babies, especially after everything she’s been through with her daughters’ health. It breaks my heart, but she’s said she’s had to put her music on hold while she focuses on this and their care. It’s a huge sacrifice, but honestly, it just shows what an amazing person she is. I’ll miss the music, but I’m so proud of her for prioritizing what really matters.

Speaking on Heart FM’s breakfast show with Amanda Holden and Jamie Theakston, she explained that while she wouldn’t rule out making music again, her children are currently her top priority.

Look, I’m completely dedicated to my kids – they’re everything to me. Honestly, right now, I just don’t have the bandwidth for anything else. My priority is fighting for them, making sure they get the heel prick test improved, and helping them grow up strong and healthy. That’s what I’m pouring all my energy into.

‘Because that’s going to determine their future. That’s my main focus right now.’

She told the Daily Mail that raising the twins has been a very emotional experience, with some days being incredibly difficult and others a little easier.

Jesy shared that she and her ex-partner, Zion, didn’t anticipate the challenges of raising their children, and covering their medical expenses is a constant worry.

She described the daily medical treatments her babies receive as heartbreaking, explaining that their cries and screams make her feel like she’s the one causing them pain.

Jesy told the Daily Mail that it’s hard to describe how demanding her daily life is – you really have to experience it to understand, she said.

To be honest, I’m finding it really difficult to manage some new medical needs. It’s something I never anticipated dealing with, and it’s been a real challenge.

It’s hard because they’re so small, and even though I know what I’m doing is ultimately helpful for them, it’s really upsetting to hear them cry and feel like I’m causing them pain. I just wish I could always be the comforting parent they need.

Jesy explained that describing a typical day with her twin daughters is impossible because every day feels different emotionally.

It’s hard to describe what my days are like. Some are really difficult, while others are lighter and the weight of their diagnosis doesn’t feel as strong. I don’t always dwell on it, and there are moments of relief.

Lots of mums have warned me – it’s going to be up and down, a real emotional ride! That’s why I’m trying to just focus on getting through each day as it comes. Honestly, I don’t expect things to be calm or predictable at all; it feels like a rollercoaster, and I’m bracing myself for that!

She also spoke about the heartbreaking news that Ocean and Story might not survive past their second birthdays.

Jesy Nelson recently told Jamie Laing on his podcast, Great Company, that she’s optimistic about her children’s progress now that they’re getting medical care.

Spinal muscular atrophy is a condition that causes muscles to weaken and waste away. It happens because people with this condition are missing a gene that most people have.

It’s just…it’s horrifying to watch. Their little bodies are slowly losing muscle, just fading away, and if they don’t get help soon, it’s going to take everything. They won’t be able to breathe, they won’t be able to swallow…it’s everything. And the doctors say…they say these precious babies won’t even make it to their second birthday. It’s just…it breaks my heart to even think about it.

This isn’t ideal, but I’m accepting it and focusing on making things as good as possible. My daughters are incredibly strong and I truly believe they’ll overcome any challenges they face.

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2026-03-15 20:07